Indian Journal of Rheumatology

ORIGINAL ARTICLE
Year
: 2013  |  Volume : 8  |  Issue : 2  |  Page : 68--72

Quality of life of children with juvenile idiopathic arthritis and its relationship with parental stress


Hepsibai Joseph1, Ruma Nayak1, Mary Johnson1, Solomon Christopher2, Sathish Kumar3 
1 Department of Pediatrics Nursing, Christian Medical College, Vellore 632004, India
2 Department of Biostatistics, Christian Medical College, Vellore 632004, India
3 Department of Pediatrics Unit II, Christian Medical College, Vellore 632004, India

Correspondence Address:
Sathish Kumar
Department of Pediatrics Unit II, Christian Medical College, Vellore 632004
India

Objective: To determine the quality of life and parental stress in children with juvenile idiopathic arthritis (JIA). Methods: Patients with juvenile idiopathic arthritis (JIA) and their parents were interviewed by a trained nurse in the clinic. Demographic data of parent«SQ»s education, income, children disease subtype, medications and disease severity were collected. Quality of life was assessed by the Juvenile Arthritis Quality of Life Questionnaire (JAQQ) and parental stress was assessed by Pediatric Inventory for Parents (PIP). Results: 69 Consecutive children with JIA were recruited. Those children with Polyarticular JIA subtype and with deformity as JIA disease severity grade had poor QOL and those parents of children with Polyarticular subtype and with deformity had high parental stress. The was negative correlation between the QOL and parental stress (r ¼ -0.55; p ¼ 0.003). Conclusion: Quality of life in children with JIA depends on disease subtype and outcome. As the child«SQ»s QOL decreases parental stress increases. Clinicians should adopt effective techniques to help parents understand their children«SQ»s medical condition and support them.


How to cite this article:
Joseph H, Nayak R, Johnson M, Christopher S, Kumar S. Quality of life of children with juvenile idiopathic arthritis and its relationship with parental stress .Indian J Rheumatol 2013;8:68-72


How to cite this URL:
Joseph H, Nayak R, Johnson M, Christopher S, Kumar S. Quality of life of children with juvenile idiopathic arthritis and its relationship with parental stress . Indian J Rheumatol [serial online] 2013 [cited 2019 Nov 21 ];8:68-72
Available from: http://www.indianjrheumatol.com/article.asp?issn=0973-3698;year=2013;volume=8;issue=2;spage=68;epage=72;aulast=Joseph;type=0