Tab Application Banner
  • Users Online: 663
  • Home
  • Print this page
  • Email this page
Home About us Editorial board Ahead of print Current issue Search Archives Submit article Instructions Subscribe Contacts Login 
PERSPECTIVES
Year : 2020  |  Volume : 15  |  Issue : 6  |  Page : 217-219

Conquering myositis, beyond remission


1 Breast Cancer Australia, Perth, Australia
2 Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow, Uttar Pradesh, India

Correspondence Address:
Dr. T G Sundaram
Department of Clinical Immunology and Rheumatology, Sanjay Gandhi Postgraduate Institute of Medical Sciences, Lucknow - 226 014, Uttar Pradesh
India
Login to access the Email id

Source of Support: None, Conflict of Interest: None


DOI: 10.4103/injr.injr_179_20

Rights and Permissions

Akin to a stowed sailboat, limiting management of chronic illnesses such as idiopathic inflammatory myopathies (IIM) to diagnosis, investigations, and drug prescriptions, is like leaving the seas unchartered. The importance of holistic care, including psychological and social support, cannot be overemphasized. In the face of adversity, patients seek refuge in friends and kin for emotional support. In such times, mutual support from others with common experiences has great potential in improving management. In this era of borderless e-communication, online patient communities are paving the road for wholesome and holistic care to bring about a positive change in patients' lives. Through this interview with Amber O'Connor, who not only survived, but conquered IIM over 16 long years, we take you through the oft-ignored realms of patient awareness, education, support communities, the power of being understood, and the transformative effect these little things can have in enriching patients' lives.


[FULL TEXT] [PDF]*
Print this article     Email this article
 Next article
 Previous article
 Table of Contents

 Similar in PUBMED
   Search Pubmed for
   Search in Google Scholar for
 Related articles
 Citation Manager
 Access Statistics
 Reader Comments
 Email Alert *
 Add to My List *
 * Requires registration (Free)
 

 Article Access Statistics
    Viewed106    
    Printed0    
    Emailed0    
    PDF Downloaded19    
    Comments [Add]    

Recommend this journal